I highly recommend visiting Virtual
Trials, a site specifically dealing with the treatments of brain tumors.
Newly diagnosed patients and first time visitors should begin with their Brain
Tumor Guide and then move on to their Survivor
Stories and their Noteworthy Treatments
Section pages.
National level groups you should
consider contacting are The National Brain Tumor
Foundation, The Brain Tumor Society, and
The American Brain Tumor Association.
I
would also consider joining the BrainTmr Mailing
List. The amount of email traffic on a daily basis on the list can be
quite daunting at times. However, the list is an invaluable resource for not
only medical knowledge, but for tackling the practical day-in-and-day-out
brain tumor survivor issues, and for providing an emotional shoulder to lean
on.
I also highly recommend at some point you get a consultation from a leading brain tumor center. The research I've done (primarily by participating on the
previously mentioned email list) indicated the three best centers in the USA for treating brain tumors are:
-
The Brain Tumor Center at Duke in North
Carolina
-
MD Anderson Cancer Center in
Texas
-
The Brain Tumor Research Center at UCSF in San
Francisco
As you see after reading the other pages
of this site, I decided to consult with Duke due to the reputation of their top neuro-oncologist, Dr. Henry Friedman,
and their location.